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On the 13 of March 2008 at the Ożarowska Centre, a
meeting of parents with cerebral palsy children and dr
Eva Kooyman (the
president
of
Wandafonds) and
Ewa Jagiełło (the member of the
management)
took place. There were also present: parents from
Zagórze and Ożarowska as well as the medical doctors
from those centers: dr Katarzyna Sakławska, dr Krystyna
Bobrowska, dr Barbara Sińczuk, and dr Bożena Wądołowska.
They were talking about the ways of medical treatment
and taking care of disabled children, and also about
dealing
with the problems
of everyday’s life. As a result of the discussion,
parents agreed to create an association to
take action
together in
solving problems of the
families with disabled children. There have created an
initiative group. The task of the group was to register
the association. As a member of this group there
are: Urszula Siemaszko, Darek Pasiecznik, Tomasz Byczuk,
Monika Górnik, Małgorzata Maciocha, Katarzyna Krzyżewska,
Elżbieta Klicka, Mariola Lasota, Marzenna Oddana,
Katarzyna Młynarczyk, Elżbieta Gos, Marek Kupiec, Ewa
Mościcka, Edyta Sobczak
There have been chosen main aims of the
association, such as:
●Helping
children with
cerebral palsy in a
wide
sense
● creating a
daily stay centre
for the children till they became adult, where they
could be educated and rehabilitated.
● creating a transport system
for the children to
their
rehabilitation
centers
● create the possibility for the children
the rehabilitation at the swimming
pool
They had agreed a
manifest, that will be send
to the
local authorities,
to the Ambassador of Nederland and
to Leo
Beenhakker – the ambassador of the Wandafonds Foundation
during
the
meeting on the 18 of march. Ewa
Jagiełło have agreed to write the manifest
and Małgorzata
Morawska will translate it in to English.
18th March 2008
Warsaw
Dear Sir,
The parents of children suffering from celebral palsy
and being rehabilitated in Zagórze,
STOCER
Rehabilitation Centre (Ożarowska) and Centrum
Zdrowia Dziecka rehabilitation centres feeling the need
of closer cooperation for the benefit of their children
as well as the future patients of these re-medial
centres with the
date of 12th March 2008 have taken up a
decision to establish the Association.
It is the first association of parents whose children
are affected by celebral palsy to be established in
Mazowieckie county.
The parents’ dreams are big; as big as the laboriuos
work they do to improve the quality of life of these
children. They earnestly want to improve the condition
of the rooms the children are being rehabilitated in.
They see the necessity of establishing a centre for
daily stay for the disabled children where their
children can learn and rehabilitate during all year
long, not only periodically as it is possible now at
Medical
Departments. Such centre, in which education,
rehabilitation and social care is provided
simultaneously, could be the beginning of System of Care
for cerebral palsy children in Poland. Building the
system is needed for effective treatment of those
children.
They also feel the need to equip the centre with the
most modern equipment and fittings and to let their
children be rehabilitated by the best specialists.
They are aware how hard it is to overcome difficulties
alone, how much they depend on the help of others. They
have learnt it during the everyday struggle for their
child.
Every day their children have to be transported to the
rehabilitation centres, which may even mean driving the
distance of 60 kilometers; in many
cases parents don’t possess their own vehicle to do so.
These children lack wheel chairs, walkers and specially
designed furniture crucial to allow them to live a
normal and dignified life and participate in various
activities along with other children.
Today, these parents turn to you with a great request
for help and support in the realisation of their rather
difficult to achieve aims and helping their children to
live an easier and better life.
The Board of the Association.
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