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BOSK

The BoSK

Association of motor disabled and their parents

Information, recommendation and support by a motor handicap

In 1952, the BoSK started as Association Parents of Spastic Children. Over the years also other handicaps got the attention of the association, so that the name became modified in BoSK, association of motor disabled and their parents. The abbreviation BoSK however, as a trade name continued to exist. Meanwhile the BoSK is more than a parent association: young-adults with a handicap can become independent members. Meanwhile there are also work groups for adults. The work area of the BoSK has become broader in the previous years, but it is still all about people who have been disabled from their youth/birth.

Objective

One of the main aims of the parent association is the exchange of experiences and knowledge between parents and between parents and care workers. Parents of a child with a handicap have one thing in common: they have a child who is ' different '. Quite often this creates difficulties. Then it will be a relief and stimulating to talk with other parents of a child with a handicap. If you replace the word ‘parents ' by ' young adults ' this objective can also be applied. Contact with companions in distress is for all BoSK members particularly important.

Giving information concerning supplies and activities in the own region, identifying and removal of bottle-necks and taking part in conversations at policy level. In short: the departments

are the bases of the association.

Learning from each other

Moreover the BoSK is an important association for care workers. Their willingness to help, their recommendation and active input can no longer be eliminated from the BoSK. Care workers come under the category of ' extraordinary members ' so a distinction can be made between them and (parents of) children/adults with a handicap.

The involvement of extraordinary members is also very valuable for the daily practice: thus care workers can become aware, that parents of disabled children themselves are experts too. They have a considerable amount of expert experience.

What does the BoSK do for you?

• Organise informative meetings, both nationally and regionally. The different BoSK departments try to offer assistance close to home, including by means of individual conversations, giving information concerning supplies and activities in their own region, the identification and elimination of bottle necks and taking part in  conversation at policy level. In short: the departments are the basis of the association.
• Knowledge and experience exchange by means of the BoSK magazine, newsletters and personal contact. The BoSK distributes brochures and information by handicap and gives out information concerning the different aspects of a handicap. The BoSK magazine appears a minimum of four times per year, with captivating handicap-specific articles and general contributes concerning appliances, compensations, taxes, letters of members and communications concerning activities of the BoSK and third parties. And thanks to the support of a lot of volunteers the BoSK always offer its members a listening ear.

• It looks after the interests, both individually and collective. Political decisions have frequently far-reaching consequences on our members. The BoSK - particularly the governing board and the national office - lets the voice of its members be heard by the government, political, the board of care institutions and scientific organisations. Therefore the BoSK stays in contact with organisations nationally and internationally, by which knowledge exchange is the key word.
• To promote self-help. The B0SK organises self-help weeks for children/young people with spina bifida and in the summer a family holiday week. These are exclusively for B0SK - members.

Which handicaps

To the areas of special attention of B0SK belong:

• Spasticity (with a special work group hemiplegia)
• Hydrocephalus and spina bifida (water head and open back)
• Adults with spina bifida
• Adults with spasticity
• Speech -/language impairments
• Schisis (lip -, jaw -, palate split)
• Plural complex handicaps (combination of physical and intellectual handicaps)
• Tyltyl multiple handicaps (combination of physical and intellectual handicaps
• Syndrome of Joubert
• Stickier syndrome; contact group both for children and for adults
• Pierre Robin sequence
• Congenitally or acquired shortening of the leg;

• Work group’ put on another leg '.

For these handicaps exist work groups exist. The members of the work group discuss developments in all kinds of areas which concern the handicap, discuss bottle-necks and work toward the exchange of important information. That is possible by means of the B0SK magazine, as topic on one of the national information - and meeting days or in the form of a brochure.

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11 Apply? Fill up the slip and send it in a sufficiently stamped envelope to:

BoSK

PO Box 3359

3502 GJ Utrecht

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Cooperation

THE BOSK does not do everything alone. At a number of associations it is often possible for BoSK-members to obtain good additional information.  Therefore it is possible to become a combined member against a lower tariff (only for parents). THE BOSK is also part of coordinating organisations, such as the Chronic Patients and the Disabled Persons Council, which among others let themselves, be heard in political The Hague, but is also part of the Association of Cooperating Parent Associations and Patient Organisations.

National oracle

The national office fulfils a kind of "traffic -square function". She keeps matters in movement, answers questions of individual members, collects information, is active for the departments, accompanies the work groups and supports the administrative and governing board.

For who is the BoSK intended

THE BOSK is there for:

• parents of children with a handicap
• young people with a handicap
• adults with spina bifida
• adults with spasticity
• adults with the Stickier syndrome
• care workers.

We also  know donors.

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   Do you want to know more? Please contact us!

In this short familiarisation it is impossible  for us to inform you entirely concerning what the BOSK can do for you.  We gladly inform you about subjects which concern you personally. Individual problems can always be presented to the employees of the national office. For vast and current news you can request a copy of  the BOSK magazine or visit our Internet site: www.bosk.nl.

You too can become a member of the BoSK

As a member you  can profit of our knowledge and experience. Also it is possible that you will find your way more rapidly in the medical mill and at agencies, that you  can make  more aware choices and that  you become a better speaker with experts. Moreover the BOSK and the other members can then profit of your input and experience. Thus  we can improve our work together for a future for all of us.

Do you want to know more? Phone, write or e-mail us at.

BOSK

Landelijk Bureau

Postbus 3359

3502 GJ Utrecht

Tel. 030 - 245.90.90

Fax: 030 - 231.38.72

info@bosk.nl

Look also on the Internet at: www.bosk.nl